Society

I am a MAID provider. It’s the most meaningful—and maddening—work I do. Here’s why.

Canada’s MAID laws are missing fundamental safeguards for vulnerable people. That needs to change. 

Soon after I entered medicine in 2005, I realized that I was more interested in the human experience of illness than the illness itself. I completed a rotation in medical oncology while doing a combined MD and PhD in cancer research at the University of Toronto. The oncologist would talk to the patient about their cancer, their chances with treatment and so on—and then they would leave. It was the nurses and social workers who would stay to deal with questions like: “Oh my goodness, what am I going to tell my children?” I wanted to stay around for those conversations. I ended up specializing in cancer psychiatry at the University Health Network, or UHN, where most of my patients are dealing with cancer. What I find most engaging and meaningful is helping people deal with questions of life and death. 

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When MAID became legal in Canada in 2016, hospitals scrambled, trying to figure out how to respond. I’m in the division of psychosocial oncology at UHN, and our department head, Gary Rodin, stepped up and said we would take on designing MAID protocols. His reasoning was that our department is used to helping people grapple with death—that’s our specialty. He asked if I would volunteer to head up UHN’s MAID framework, and I jumped at the chance.

As the head of UHN’S MAID program, I oversaw hundreds of cases. I also personally provided MAID numerous times. I can’t tell you how many, because I don’t keep track. They’re not trophies—this is usual care. I see a lot of death: 60 per cent of my patient population in routine clinical care die. I don’t keep track of how I help them die, whether by MAID or my regular psychosocial care. 

Being a MAID provider requires what I call exquisite professionalism: my personal values shouldn’t matter when it comes to how I assess a patient for MAID. Having said that, my opinion is that we shouldn’t be providing MAID for mental disorders—and more broadly than that, for chronic illness. I don’t think death should be society’s solution for all forms of suffering. Society needs to agree on what types of suffering are appropriate to respond to with MAID. If someone is suffering primarily because they can’t afford housing rather than directly from a qualifying medical condition, do we think that death is the appropriate solution for that? If your suffering is because you can’t afford your medication, or other structural vulnerabilities only indirectly related to a medical condition, is that a good reason for MAID? I personally think this is the medicalization of suffering, but I’m a servant of my country, and I will do what the public mandate demands. I’m just not sure we have that mandate.

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I also find it maddening that the law itself is missing crucial safeguards for patients. The original MAID law stipulated, among other requirements, that a patient’s natural death has to be “reasonably foreseeable.” In 2021, this condition was successfully challenged in a court case, which created a second MAID track for people with serious and chronic (but not life-threatening) illness. This year, the law was set to expand to include patients whose sole reason for seeking MAID is mental illness. The government just announced that it would seek a one-year delay in the expansion to allow more time to prepare the health-care system. The delay was the right move. I’m part of a team developing guidelines and training for practitioners, and we need the time to finalize and disseminate this. This information and training wasn’t available in 2021, and I think this is the reason there have been some problematic cases.

The stakes are higher when you give MAID to someone who wouldn’t otherwise die. I was on call recently and was consulted to see a patient admitted to the hospital for chronic pain. This patient has a complex medical and psychiatric history, significant trauma and a lot of psychosocial vulnerability. They are lonely. The patient was told there is nothing further that could be done for their pain, and so they asked to apply for MAID.

I was not their MAID assessor, but I was asked to consult as a psychiatrist for depression and suicidality. The patient told me that if they didn’t feel quite as lonely, if they felt that anyone cared about them at all, they probably could tolerate their pain better. I expressed to this patient that I thought it would be a great loss to society if they died because they had contributed and still had a lot to offer. In other words, I expressed caring, which seemed to mean everything to this person. 

“I expressed caring, which seemed to mean everything.”

I did my best to advocate for getting this person into a study for psychedelic-assisted psychotherapy, which I thought could be very helpful, but I wasn’t successful. There was no way they could afford it privately, since it costs thousands of dollars. This was so morally distressing to me. This person was willing to have the treatment, but couldn’t access it. I think it would be a tragedy if this lovely person went ahead with MAID. As far as I know, this person is now applying for MAID. I have no doubt in my mind that when they apply, they could be found eligible and receive it.

That case gives me so much distress. I have to fight with myself not to follow that patient and counsel them: hold on, a study might open, just give it a little more time. But I can’t take on every patient, and I don’t think society will ever be able to completely fill the gaps in access and resources. The law desperately needs a greater role for clinical perspective. Right now, MAID assessment is a checklist of legal requirements: you have to be considered capable of making your own decisions, be above 18 years of age and have a “grievous and irremediable” condition, among other stipulations. It’s about checking boxes. More than that, MAID assessors typically parachute into a patient’s life: they don’t typically have a long-term relationship with them. 

Crucially, the law does not require a clinician to sit with the patient and have a meaningful discussion about their desire for death—and what social and societal factors might be playing a part. I’m trying to put that lens into the education curriculum we’re developing for clinicians, but it needs to be written into the law to have the weight of a legal requirement. 

The MAID track for people without a terminal illness stipulates that the clinician must have “discussed with the person the reasonable and available means to relieve the person’s suffering, and agree that the person has given serious consideration to those means.” I don’t think that’s sufficient. It should say something like “the clinician has to agree that there have been reasonable attempts at treatment.” The practice guidelines and training will suggest this, but they are optional recommendations, and different jurisdictions and providers will adopt them unevenly.

Early on, I had a young patient who had cancer with a 65 per cent chance of cure. This person refused any treatment, and two other MAID assessors agreed they met all the eligibility criteria, in that they had a grievous and irremediable condition—it was irremediable because they didn’t want the treatments available. That’s what the law currently states: as long as the patient doesn’t want the treatment, their condition is considered irremediable—even if there are effective treatments.

But not treating a cancer with such a high chance of cure goes against medical practice standards. The doctors involved had a lot of moral distress about this person’s request for MAID. This person signed consent for me to share their story, but I feel differently about it than they did. They saw it as an expression of their autonomy; I saw it as dystopian.

This person organized a goodbye party. They invited all their friends to the hospital atrium and ordered pizza, calling it a reverse birthday party. It was a large gathering of friends. They had about eight people in the room where I was going to administer MAID. They got into a hospital bed, and everyone in the room laid a hand on them. There was so much crying in the room, including from their parents. 

The IV was set up and prepared. “This is the very last time I’ll ask you this,” I said. “Are you sure?” They looked at me and said yes. And then the syringes went in, one after the other. The whole thing usually takes about five minutes, although it took longer than usual in this case because the patient was otherwise young and healthy. Eventually their heart stopped, I left the room and did my usual post-MAID routine: called the coroner, reported the death and filled out the paperwork. We always have social workers and spiritual care available for the family and friends, but this time no one asked for additional support. After the coroner cleared everything, they started drifting off one by one.

I didn’t regret it at first. But when I started thinking deeply about how to better safeguard this process, I regretted ending this young person’s life. I just parachuted in, I didn’t know this patient. And I didn’t take the time to have a meaningful discussion with them. I didn’t sit down and say, “Why don’t you just try this treatment? If it’s as bad as you think it’s going to be, MAID will be available.” MAID was so new then, and we were all so focused on patient autonomy. The current law has no place for clinical judgement, and no stipulation for meaningful conversation. If it did, this person may be alive today.

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Gaps in the law become a bigger problem with mental disorders. It’s not at all clear, even for a practising psychiatrist like me, what to do for a patient with a mental illness who asks to die. I recently had a patient with chronic depression who was planning to apply for MAID until we finally found an effective treatment. They asked me how requests in patients with depression would eventually be assessed. I said we’d have to distinguish a rational desire to die from one driven by depression, and they replied, “But why would I want to die if it wasn’t because of the depression?” That gave me pause. At the very least, I think we need to prompt clinicians to exercise clinical judgment—both the clinician and the patient should feel that there have been reasonable attempts at treatment. And rather than just checking boxes, we should have to sit down and have a meaningful conversation about the desire for death. 

Finally, there needs to be a clear temporal timeframe in the law assigned to the phrase “reasonably foreseeable natural death.” This was part of the original law, which was very Canadian—it was purposefully vague so as not to upset anybody. But in practice, providers have interpreted this to mean anything from a few months for terminal illness to several years for chronic illness. The MAID track for people who don’t have a reasonably foreseeable natural death is more safeguarded, including a 90-day waiting period and required expertise on the condition underlying the request. It’s not safe clinical practice for people who potentially have years to live to bypass these safeguards.

I think we have forgotten, over the past several years, that our roles as health care providers is to help patients make the best decisions for themselves. I’m not trying to deny patient autonomy—it’s their decision—but I don’t think I should blindly defer to autonomy. It’s so nuanced, because again, I have to keep my personal value system out of it. Helping someone die, especially when they wouldn’t otherwise, shouldn’t be a matter of checking things off a list. 

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